Rare Disease day 2024

Worldwide, there are more than 300 million people with rare diseases. Too often, these individuals and families are left isolated and without answers to their medical questions. It doesn't have to be that way. 

 

Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. The National Organization for Rare Disorders (NORD) is the trusted voice ofor those living living with a rare disease. 

 

With over 7000 rare diseases, it’s impossible to know about all of them. However it is possible for doctors to appreciate that rare diseases are collectively common and to recognise the exceptional challenges faced by patients with rare diseases. M4RD UK provides education about the relevance of rare disease to everyday clinical medicine and equips doctors to manage their patients effectively. 

 

Val and Karen joined the first do no harm: Expert reflections on a rare bone disease’ at the Hunterian Museum. to #ShowYourStripes in support of those with a rare disease. Thank you FOP friends for the bag, badges and the stripy socks that will remind us of the impactful evening meeting with people with rare bone disease, scientists and clinicians.